holdingtomorrow

our journey of hope and healing through autism

Autism recovery in progress

We’ve seen some great developmental jumps around here lately, that I’m so happy about.

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Hannah’s always had a sense of humor.  Lately, it’s been fun to see her really verbalize it- even when she’s mad.  A few days ago, I somewhat impatiently reminded her to put away her drawing supplies.  Hannah’s never liked being talked to sternly, and this time was no exception.  “If you were a little girl, I would send you to your room!”  Touche! (Sometimes we escort her to her room when she’s throwing the occasional fit)  Last night, Hannah was upset that her screen time was over.  When Nathan made a comment about her grumpy face, Hannah said,  “I’ll turn you into juice, spill you, and mop you up!”  We all broke out laughing.

Recently, we added acetyl-l-carnitine to Hannah’s supplement line up.  Carnitine has been reletively well researched and has been found to be effective in the majority of kids with autism.  In the week after beginning carnitine, we saw a jump in Hannah’s drawing skills.   She’s able to print letters smaller as well, which is great for school work.  Hannah’s starting to read sight words that we’ve worked on, and asks what the street signs say as we drive to school.   Her most recent fine motor assessment showed that her pencil skills are only 1 point  below the normal range.

Hannah is blending in with peers in her church class, and is needing less support at school.

Another great development is that Hannah is noticing when she’s hungry, and asking for food.  For the longest time, she didn’t seem to notice that she was hungry, she would just get cranky- so I fed her every 2.5 hours like clockwork.  Lately, she’s started saying things like “I’m hungry.  I need food!” or “I’m still hungry- I need something else!”  It’s awesome that she can regulate that, rather than me regulating it for her.

Probably my favorite of all, Hannah has become a little question machine.  When it’s just the two of us, we have great little conversations.  It’s so wonderful to get to hear what Hannah’s thinking, and to be able explain the world to her.   Yesterday, the memories of Hannah’s early days with autism came flooding back, and the tears streamed down my face as I drove.  The fear and uncertainty I felt then has been replaced by great hope for the future.  Many people don’t believe autism recovery is possible, or have never heard of it happening.  I feel like it is happening before my eyes.  To me, it’s both a miracle and grounded in science, targeted medical treatments, and hard work.   We are not there yet, but  I feel like we are on our way.

*If you aren’t a regular reader of this blog, and don’t agree with the possibility of autism recovery, please be kind.  You also may want to read this article.

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5 comments on “Autism recovery in progress

  1. P.Toor
    February 13, 2014

    WOAH! Could you please post some of her printing/writing skills!! I am so proud of her for doing that! -Wow!

    • holdingtomorrow
      February 13, 2014

      Hi Puneet!
      She can print her letters about 1″ big, which is way smaller than a few months ago. 🙂 She can copy shapes, but had trouble with the triangle, which kept her score below the normal range. In her drawings, her stick people, flowers, clouds, and sun are clearly recognizable.
      I still do really want to have you over, I’ve just been busy and disorganized. I’m sorry!

      • P.Toor
        February 13, 2014

        No it’s okay! Don’t feel bad. I’ve been swamped myself. Been thinking of your family a lot though, especially in class. -I will have to explain when we meet.

        It is super exciting to hear about her progress in writing! -Very impressive! and her juice comment is funny haha.. we always knew Hannah had a great imagination!!

  2. Dawn Ack
    February 13, 2014

    Miracles are often accompanied with hard work. So happy to hear your great news.

  3. Jenny
    February 13, 2014

    Love the research article you attached….but especially love to hear how Hannah is doing. How I love her and you and your whole family!!! I love the juice comment…funny and clever. She is smart. And I love, love, love the photo of her with Gabby.

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