holdingtomorrow

our journey of hope and healing through autism

First Steps toward recovery- HUGE gains over the past year

Tests are so exciting right?

Captured By Becky Photography (57 of 59)

Not really, huh?  That’s why I’m going to bore you with Hannah’s recent test results, and why they are worth getting excited about.  And I’m going to try to lure you to the end with lots of new pictures of my not-so-baby girl.  🙂

You may remember that in March I was sharing my discouragement that Hannah’s fine motor assessment still places her in the severe category. I knew that Hannah had made huge strides behaviorally and socially, but I’d felt discouraged about the fine motor scores, so I’d asked the OT to quantify the results for me more, if she could.  We met with her recently, and she had a couple of really great things to say.  #1- in 10 years of being a pediatric OT, she’s never seen a child make so much progress in one school year.  #2- her experience is that kids with an ASD diagnosis, with intensive therapy, generally make 6 months of developmental gains in a 12 month period.  That makes the fact that Hannah has made roughly 20 months of developmental gain in  fine motor areas in the past 12 months truly exceptional.  With the way the tests are set up, even with 20 months of developmental progress, Hannah is still just within the severe category for fine motor skills, but the progress she is making is tremendous.

The results of Hannah’s speech assessment are equally exciting.  Early childhood development assessments often give a developmental level equivalent for where the child is functioning.  For example, Hannah’s first assessments, right after her 3rd birthday showed that her expressive Speech(what she could say) was at the level of a typical 20 month old.

At three:

Expressive Speech- 20 month- 1st percentile

Receptive speech-15 month age equivalent. 1st percentile

Nine months later (March 2012), Hannah’s scores were:

Expressive Communication:  1st percentile

Receptive Language: 3rd percentile

One year later (March 2013):

Captured By Becky Photography (56 of 59)Captured By Becky Photography (54 of 59)

Expressive Language: 18th percentile

Receptive Language: 3rd percentile

In the past year, through the combination of faith, prayer (more to come on this soon),  biomedical treatments, the iLs program, and intensive therapy, Hannah’s receptive language has improved by about 15 percentile points, which is huge.   Overseeing Hannah’s biomedical treatments and supporting her intensive therapy is time consuming and tiring, but seeing these big gains in speech and fine motor helps me be able to take a deep breath and be ready to pray and work just as hard this next year to help Hannah see huge gains this coming year.

Captured By Becky Photography (31 of 59)Captured By Becky Photography (48 of 59)

I’m sure she’s probably not supposed to say things like this, but Hannah’s OT said that she feels that she’s seen Hannah take the first steps toward recovery this year.  I have felt that way for sure, but it’s really affirming to hear that from a therapist who’s not nearly as emotionally invested in the process.

Captured By Becky Photography (59 of 59)Captured By Becky Photography (52 of 59)

So here’s to the next 12 months- I can’t wait to see what it brings!

Captured By Becky Photography (39 of 59)Captured By Becky Photography (46 of 59)

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Delightful World of Dolls

Where Dolls and Delight Collide®

Cohesive Families Of Autism

Forum For Family Preservation And Tolerance

talkingtoanonymous

rantings,ravings and thoughts of a christian mom with a son on the spectrum

holdingtomorrow

our journey of hope and healing through autism

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