holdingtomorrow

our journey of hope and healing through autism

The Future is Bright, (but the now is still hard)

Earlier this afternoon, I had Hannah’s IPP mtg with the team of professionals that work with Hannah at school.  We reviewed Hannah’s progress on the goals that were set at the beginning of the year.  Hannah met and exceeded every speech goal!  The speech therapist was just as thrilled as I am at the progress Hannah has made.  The school staff all know how hard I’ve worked outside of school time to help Hannah with her speech.  They know the time, the patience,  the sacrifice, and the creativity involved in making language and skill building happen on a daily basis.

Hannah’s team have also seen big improvements in her frustration tolerance, and are sure that she’s calmer and happier too.  🙂  In talking about how the future looks bright for Hannah, the teacher talked about Temple Grandin, an inventive scientist in the animal sciences field, who  has autism. Temple Grandin was well past her early childhood years before she developed oral communication skills.  Now she has a PhD.

It really is so wonderful to see great progress happen with Hannah, and to know that (whatever diagnosis she receives) that the future will hold wonderful things for her.  Really, I am so, so glad.  But it doesn’t take away the twinges of sadness when I see on Facebook pictures of a peers birthday party that Hannah has been left out of.   Or seeing our next door neighbor (who is Hannah’s age) race past Hannah to talk to any other member of our family.  I know that  being excluded sometimes is just part of the human condition.  But how much exclusion will there be over the next decade, or two decades?  Things are so much better since we started the Specific Carbohydrate Diet, but they aren’t all resolved.  There’s no guarantee that everything will get all better for Hannah, so that her peers include her more.  So while I’m so, so thrilled with the progress that we’ve made, there is still that little corner of my heart that aches for my little girl, and the hard things she has to face.

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5 comments on “The Future is Bright, (but the now is still hard)

  1. Jenny
    June 15, 2012

    Rebecca,
    Your posts have brought tears to my eyes. You express both your hopes and your sorrows so beautifully. Hannah is so blessed to have such incredible parents. Your strength constantly amazes me. I hope and pray that as Hannah grows, her friendships with peers will improve. I love you and your family. I’m glad you are sharing this. I truly wish we lived closer.

    • holdingtomorrow
      June 17, 2012

      Thank you, Jenny. I wish we lived closer too, and I appreciate your prayers for us!

  2. Karin
    June 15, 2012

    Sending love and prayers your way, Becky.

  3. Pingback: I’m not okay… and it’s okay. | holdingtomorrow

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This entry was posted on June 15, 2012 by in feelings, hard things, things to celebrate.
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